[EpiData-list] Remote storage/access to data collected in EpiData

EpiData development and support epidata-list at lists.umanitoba.ca
Wed Jun 3 03:01:48 CDT 2020


Thank you very much for your comprehensive response and the references.  I
am very grateful Hans.
Edna

On Tue, 2 Jun 2020, 19:56 EpiData development and support, <
epidata-list at lists.umanitoba.ca> wrote:

> Dear Edna:
>
> In our large multicenter study on treatment of multidrug-resistant
> tuberculosis in nine African countries:
>
> 1.    Trébucq A, Schwoebel V, Kashongwe Z, Bakayoko A, Kuaban C, Noeske
> J, Hassane S, Souleymane B, Piubello A, Ciza F, Fikouma V, Gasana M,
> Ouedraogo M, Gninafon M, Van Deun A, Cirillo D M, Koura K G, Rieder H
> L.  Treatment outcome with a short multidrug-resistant tuberculosis
> regimen in nine African countries.  Int J Tuberc Lung Dis 2018;22:17-25.
>
> 2.    Schwœbel V, Trébucq A, Kashongwe Z, Bakayoko A S, Kuaban C, Noeske
> J, Harouna S H, Souleymane M B, Piubello A, Ciza F, Fikouma V, Gasana M,
> Ouedraogo M, Gninafon M, Van Deun A, Tagliani E, Cirillo D M, Koura K G,
> Rieder H L.  Outcomes of a nine-month regimen for rifampicin-resistant
> tuberculosis up to 24 months after treatment completion in nine African
> countries.  EClinicalMedicine 2020;20:100268.
>
> we used Dropbox.  What is key is that you assign hierarchies and have
> central control: EpiData software is single-user software. Thus, first
> only one person at any given time can work on the dataset.  Ours was a
> special case across countries, thus each jurisdiction had an identical
> data entry form in a unique personalized country-specific Dropbox
> sub-folder on the local machine.  Only one person per country had the
> right to decide who at a given time was permitted to enter / modify
> data.  No country had access to any other country folder.  Thus, in the
> end, there were nine country-specific data sets, each in a specific
> folder.  The central study coordinating person appended all country sets
> to a single consolidated dataset.
>
> The principle of collaborating over distance with free software
> (EpiData, Dropbox, and TeamViewer) has been summarized by Ajay MV Kumar:
>
> Kumar A M V, Naik B, Guddemane D K, Bhat P, Wilson N, Sreenivas A N,
> Lauritsen J M, Rieder H L.  Efficient, quality-assured data capture in
> operational research through innovative use of open-access technology.
> Public Health Action 2013;3:60-2.
>
> If you cannot access these three articles (they are all free in the
> public domain) but would like to obtain then, please write an email to
> me (TBRieder at tbrieder.org) and I will mail them to you personally.
>
> Hans
>
>
> On 02-Jun-20 16:23, EpiData development and support wrote:
> > Dear EpiData users,
> > I have designed a relational data system for a nutritional cohort study
> in
> > Nigeria and was wondering if anyone on this forum has any tips or
> > recommendations for how best to establish a server/cloud based back up of
> > the system so that the PI's can have remote access to do additional data
> > quality assurance. More specifically, are there freely accessible or at
> > least affordable secure servers or data storage facilities that you would
> > recommend if neither ourselves or implementing partner have that facility
> > in place?
> > With kind regards,
> > Edna Ogada
> >
>
> --
> Hans L Rieder, MD, MPH
> Jetzikofenstr 12
> 3038 Kirchlindach
>    Switzerland
>
> Tel office:  +41 31 829 4577
> Tel private: +41 31 829 4578
> Mobile:      +41 79 321 9122
> Skype: hansleonhardrieder
> Web: https://www.tbrieder.org
>
>
> --
> Hans L Rieder, MD, MPH
> Jetzikofenstr 12
> 3038 Kirchlindach
>    Switzerland
>
> Tel office:  +41 31 829 4577
> Tel private: +41 31 829 4578
> Mobile:      +41 79 321 9122
> Skype: hansleonhardrieder
> Web: https://www.tbrieder.org
> _______________________________________________
> EpiData-list mailing list
> EpiData-list at lists.umanitoba.ca
> http://lists.umanitoba.ca/mailman/listinfo/epidata-list
>


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