Dear EpiData users, I have designed a relational data system for a nutritional cohort study in Nigeria and was wondering if anyone on this forum has any tips or recommendations for how best to establish a server/cloud based back up of the system so that the PI's can have remote access to do additional data quality assurance. More specifically, are there freely accessible or at least affordable secure servers or data storage facilities that you would recommend if neither ourselves or implementing partner have that facility in place? With kind regards, Edna Ogada
Dear Edna:
In our large multicenter study on treatment of multidrug-resistant tuberculosis in nine African countries:
1. Trébucq A, Schwoebel V, Kashongwe Z, Bakayoko A, Kuaban C, Noeske J, Hassane S, Souleymane B, Piubello A, Ciza F, Fikouma V, Gasana M, Ouedraogo M, Gninafon M, Van Deun A, Cirillo D M, Koura K G, Rieder H L. Treatment outcome with a short multidrug-resistant tuberculosis regimen in nine African countries. Int J Tuberc Lung Dis 2018;22:17-25.
2. Schwœbel V, Trébucq A, Kashongwe Z, Bakayoko A S, Kuaban C, Noeske J, Harouna S H, Souleymane M B, Piubello A, Ciza F, Fikouma V, Gasana M, Ouedraogo M, Gninafon M, Van Deun A, Tagliani E, Cirillo D M, Koura K G, Rieder H L. Outcomes of a nine-month regimen for rifampicin-resistant tuberculosis up to 24 months after treatment completion in nine African countries. EClinicalMedicine 2020;20:100268.
we used Dropbox. What is key is that you assign hierarchies and have central control: EpiData software is single-user software. Thus, first only one person at any given time can work on the dataset. Ours was a special case across countries, thus each jurisdiction had an identical data entry form in a unique personalized country-specific Dropbox sub-folder on the local machine. Only one person per country had the right to decide who at a given time was permitted to enter / modify data. No country had access to any other country folder. Thus, in the end, there were nine country-specific data sets, each in a specific folder. The central study coordinating person appended all country sets to a single consolidated dataset.
The principle of collaborating over distance with free software (EpiData, Dropbox, and TeamViewer) has been summarized by Ajay MV Kumar:
Kumar A M V, Naik B, Guddemane D K, Bhat P, Wilson N, Sreenivas A N, Lauritsen J M, Rieder H L. Efficient, quality-assured data capture in operational research through innovative use of open-access technology. Public Health Action 2013;3:60-2.
If you cannot access these three articles (they are all free in the public domain) but would like to obtain then, please write an email to me (TBRieder@tbrieder.org) and I will mail them to you personally.
Hans
On 02-Jun-20 16:23, EpiData development and support wrote:
Dear EpiData users, I have designed a relational data system for a nutritional cohort study in Nigeria and was wondering if anyone on this forum has any tips or recommendations for how best to establish a server/cloud based back up of the system so that the PI's can have remote access to do additional data quality assurance. More specifically, are there freely accessible or at least affordable secure servers or data storage facilities that you would recommend if neither ourselves or implementing partner have that facility in place? With kind regards, Edna Ogada
Thank you very much for your comprehensive response and the references. I am very grateful Hans. Edna
On Tue, 2 Jun 2020, 19:56 EpiData development and support, < epidata-list@lists.umanitoba.ca> wrote:
Dear Edna:
In our large multicenter study on treatment of multidrug-resistant tuberculosis in nine African countries:
- Trébucq A, Schwoebel V, Kashongwe Z, Bakayoko A, Kuaban C, Noeske
J, Hassane S, Souleymane B, Piubello A, Ciza F, Fikouma V, Gasana M, Ouedraogo M, Gninafon M, Van Deun A, Cirillo D M, Koura K G, Rieder H L. Treatment outcome with a short multidrug-resistant tuberculosis regimen in nine African countries. Int J Tuberc Lung Dis 2018;22:17-25.
- Schwœbel V, Trébucq A, Kashongwe Z, Bakayoko A S, Kuaban C, Noeske
J, Harouna S H, Souleymane M B, Piubello A, Ciza F, Fikouma V, Gasana M, Ouedraogo M, Gninafon M, Van Deun A, Tagliani E, Cirillo D M, Koura K G, Rieder H L. Outcomes of a nine-month regimen for rifampicin-resistant tuberculosis up to 24 months after treatment completion in nine African countries. EClinicalMedicine 2020;20:100268.
we used Dropbox. What is key is that you assign hierarchies and have central control: EpiData software is single-user software. Thus, first only one person at any given time can work on the dataset. Ours was a special case across countries, thus each jurisdiction had an identical data entry form in a unique personalized country-specific Dropbox sub-folder on the local machine. Only one person per country had the right to decide who at a given time was permitted to enter / modify data. No country had access to any other country folder. Thus, in the end, there were nine country-specific data sets, each in a specific folder. The central study coordinating person appended all country sets to a single consolidated dataset.
The principle of collaborating over distance with free software (EpiData, Dropbox, and TeamViewer) has been summarized by Ajay MV Kumar:
Kumar A M V, Naik B, Guddemane D K, Bhat P, Wilson N, Sreenivas A N, Lauritsen J M, Rieder H L. Efficient, quality-assured data capture in operational research through innovative use of open-access technology. Public Health Action 2013;3:60-2.
If you cannot access these three articles (they are all free in the public domain) but would like to obtain then, please write an email to me (TBRieder@tbrieder.org) and I will mail them to you personally.
Hans
On 02-Jun-20 16:23, EpiData development and support wrote:
Dear EpiData users, I have designed a relational data system for a nutritional cohort study
in
Nigeria and was wondering if anyone on this forum has any tips or recommendations for how best to establish a server/cloud based back up of the system so that the PI's can have remote access to do additional data quality assurance. More specifically, are there freely accessible or at least affordable secure servers or data storage facilities that you would recommend if neither ourselves or implementing partner have that facility in place? With kind regards, Edna Ogada
-- Hans L Rieder, MD, MPH Jetzikofenstr 12 3038 Kirchlindach Switzerland
Tel office: +41 31 829 4577 Tel private: +41 31 829 4578 Mobile: +41 79 321 9122 Skype: hansleonhardrieder Web: https://www.tbrieder.org
-- Hans L Rieder, MD, MPH Jetzikofenstr 12 3038 Kirchlindach Switzerland
Tel office: +41 31 829 4577 Tel private: +41 31 829 4578 Mobile: +41 79 321 9122 Skype: hansleonhardrieder Web: https://www.tbrieder.org _______________________________________________ EpiData-list mailing list EpiData-list@lists.umanitoba.ca http://lists.umanitoba.ca/mailman/listinfo/epidata-list
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